Analysis of the Relationship of Stigma to the Quality Life of Leprosy Patients

Authors

  • Andi Ayu Ariesty Ajsal Health Administration Study Program, Institute of Science and Health Bone, South-Sulawesi
  • Rahmawati Health Administration Study Program, Institute of Science and Health Bone, South-Sulawesi

DOI:

https://doi.org/10.61963/jpkt.v1i2.26

Keywords:

Quality of Life, Leprosy, Stigma

Abstract

Leprosy sufferers from a very high disease burden, those with disabilities become unproductive, unable to live independently to meet their needs. WHO defines quality of life as an individual's sense of their place in life within the framework of their culture, value system, and its link to life objectives, expectations, standards, and other relevant factors. Stigma against leprosy sufferers and even their entire families is still found in society. This is what makes most leprosy sufferers prefer to keep to themselves and avoid association with society because they are ashamed and afraid of their illness. So that it can affect the quality of life. Therefore, this study was conducted to analyze the relationship between stigma and quality of life. This study used primary data through interviews with 63 lepers with a cross-sectional study design using WHOQOL-BREF. The results of this study indicate that there is a relationship between stigma and quality of life for leprosy sufferers in Bone district with a p value = 0.000 < 0.05.

References

Agarwal, N., & Mishra, A. (2022). Community Rehabilitation in Leprosy. In Clinical Cases in Leprosy (pp. 101-110). Springer, Cham. https://doi.org/10.1007/978-3-031-08220-7_9

Akehurst, A. M. (2021). The Love of Friends Made This in The Cause of Humanity. Health and Architecture: The History of Spaces of Healing and Care in the Pre-Modern Era, 74.

Bainson, K. A., & Van den Borne, B. (1998). Dimensions and process of stigmatization in leprosy. Leprosy Review, 69(4), 341-350.

Bukhari, S. R., Imtiaz, A., Akbar, N., Malik, U. A., & Gilani, A. (2019). Internalized stigma, quality of life and self-esteem in chronic schizophrenic patients. Pakistan Journal of Medical Research, 58(1), 13.

Das, N. K., De, A., Naskar, B., Sil, A., Das, S., Sarda, A., & Chatterjee, G. (2020). A quality-of-life study of patients with leprosy attending the dermatology OPD of a tertiary care center of Eastern India. Indian journal of dermatology, 65(1), 42. https://doi.org/10.4103%2Fijd.IJD_729_18

Davern, J., & O’Donnell, A. T. (2018). Stigma predicts health-related quality of life impairment, psychological distress, and somatic symptoms in acne sufferers. PLoS One, 13(9), e0205009. https://doi.org/10.1371/journal.pone.0205009

DeFreitas, S. C., Crone, T., DeLeon, M., & Ajayi, A. (2018). Perceived and personal mental health stigma in Latino and African American college students. Frontiers in public health, 6, 49. https://doi.org/10.3389/fpubh.2018.00049

Govindharaj, P., Srinivasan, S., & Darlong, J. (2018). Quality of life of persons affected by leprosy in an endemic district, West Bengal, India. Indian Journal of Dermatology, 63(6), 459. https://doi.org/10.4103%2Fijd.IJD_324_18

Guimenes Albuquerque, R., Grüdtner Buratto, G., Hirotsu, C., Maeda, S. M., Floriano, M. C., Levy Andersen, M., ... & Tomimori, J. (2019). Comparison of quality of life evaluated by SF?36 and DLQI in multibacillary and paucibacillary leprosy patients from Sao Paulo, Brazil. International Journal of Dermatology, 58(12), 1415-1422. https://doi.org/10.1111/ijd.14489

Heritage, B., Rees, C. S., & Hegney, D. G. (2018). The ProQOL-21: A revised version of the Professional Quality of Life (ProQOL) scale based on Rasch analysis. PloS one, 13(2), e0193478. https://doi.org/10.1371/journal.pone.0193478

Jung, S. H., Han, H. W., Koh, H., Yu, S. Y., Nawa, N., Morita, A., ... & Oh, J. (2020). Patients help other patients: Qualitative study on a longstanding community cooperative to tackle leprosy in India. PLoS neglected tropical diseases, 14(1), e0008016. https://doi.org/10.1371/journal.pntd.0008016

Leiler, A., Bjärtå, A., Ekdahl, J., & Wasteson, E. (2019). Mental health and quality of life among asylum seekers and refugees living in refugee housing facilities in Sweden. Social psychiatry and psychiatric epidemiology, 54(5), 543-551. https://doi.org/10.1007/s00127-018-1651-6

Li, M. (2020). The Influence of Stigma on People with Mental Illness. Journal of Psychological Research, 2(4). https://doi.org/10.30564/jpr.v2i4.2395

Marahatta, S. B., Amatya, R., Adhikari, S., Giri, D., Lama, S., Kaehler, N., ... & Adhikari, B. (2018). Perceived stigma of leprosy among community members and health care providers in Lalitpur district of Nepal: A qualitative study. PLoS One, 13(12), e0209676. https://doi.org/10.1371/journal.pone.0209676

Maymone, M. B., Venkatesh, S., Laughter, M., Abdat, R., Hugh, J., Dacso, M. M., ... & Dellavalle, R. P. (2020). Leprosy: Treatment and management of complications. Journal of the American Academy of Dermatology, 83(1), 17-30. https://doi.org/10.1016/j.jaad.2019.10.138

Narang, T., & Kumar, B. (2019). Leprosy in children. Indian Journal of Paediatric Dermatology, 20(1), 12-24. https://doi.org/10.4103/ijpd.IJPD_108_18

Rahayuningsih Euis, 2012. Analisis Kualitas Hidup Penderita Kusta di Puskesmas Kedaung Wetan Kota Tangerang Tahu 2012. Tesisditerbitkan. Jakarta, FKM-UI 2012.

Ribé, J. M., Salamero, M., Pérez-Testor, C., Mercadal, J., Aguilera, C., & Cleris, M. (2018). Quality of life in family caregivers of schizophrenia patients in Spain: caregiver characteristics, caregiving burden, family functioning, and social and professional support. International journal of psychiatry in clinical practice, 22(1), 25-33. https://doi.org/10.1080/13651501.2017.1360500

Ribeiro, Í. J., Pereira, R., Freire, I. V., de Oliveira, B. G., Casotti, C. A., & Boery, E. N. (2018). Stress and quality of life among university students: A systematic literature review. Health Professions Education, 4(2), 70-77. https://doi.org/10.1016/j.hpe.2017.03.002

Sarode, G., Sarode, S., Anand, R., Patil, S., Jafer, M., Baeshen, H., & Awan, K. H. (2020). Epidemiological aspects of leprosy. Disease-a-Month, 66(7), 100899. https://doi.org/10.1016/j.disamonth.2019.100899

Singh, R., Singh, B., & Mahato, S. (2019). Community knowledge, attitude, and perceived stigma of leprosy amongst community members living in Dhanusha and Parsa districts of Southern Central Nepal. PLoS neglected tropical diseases, 13(1), e0007075. https://doi.org/10.1371/journal.pntd.0007075

Skevington, S. M., & Böhnke, J. R. (2018). How is subjective well-being related to quality of life? Do we need two concepts and both measures?. Social Science & Medicine, 206, 22-30. https://doi.org/10.1016/j.socscimed.2018.04.005

Somar, P. M. W., Waltz, M. M., & van Brakel, W. H. (2020). The impact of leprosy on the mental wellbeing of leprosy-affected persons and their family members–a systematic review. Global Mental Health, 7.

Sottie, C. A., & Darkey, J. (2019). Living with stigma: Voices from the Cured Lepers’ village in Ghana. Social Work in Health Care, 58(2), 151-165. https://doi.org/10.1080/00981389.2018.1526842

Taylor, S., Landry, C. A., Rachor, G. S., Paluszek, M. M., & Asmundson, G. J. (2020). Fear and avoidance of healthcare workers: An important, under-recognized form of stigmatization during the COVID-19 pandemic. Journal of anxiety disorders, 75, 102289. https://doi.org/10.1016/j.janxdis.2020.102289

Urgesa, K., de Bruijne, N. D., Bobosha, K., Seyoum, B., Mihret, A., Geda, B., ... & Aseffa, A. (2022). Prolonged delays in leprosy case detection in a leprosy hot spot setting in Eastern Ethiopia. PLOS Neglected Tropical Diseases, 16(9), e0010695. https://doi.org/10.1371/journal.pntd.0010695

Utian, W. H., Janata, J. W., Kingsberg, S. A., Schluchter, M., & Hamilton, J. C. (2018). The Utian Quality of Life (UQOL) Scale: development and validation of an instrument to quantify quality of life through and beyond menopause. Menopause, 25(11), 1224-1231. https://doi.org/10.1097/GME.0000000000001223

Van ‘t Noordende, A. T., Aycheh, M. W., & Schippers, A. (2020). The impact of leprosy, podoconiosis and lymphatic filariasis on family quality of life: A qualitative study in Northwest Ethiopia. PLoS neglected tropical diseases, 14(3), e0008173. https://doi.org/10.1371/journal.pntd.0008173

Van Brakel, W. H., Sihombing, B., Djarir, H., Beise, K., Kusumawardhani, L., Yulihane, R., ... & Wilder-Smith, A. (2012). Disability in people affected by leprosy: the role of impairment, activity, social participation, stigma and discrimination. Global health action, 5(1), 18394. https://doi.org/10.3402/gha.v5i0.18394

Van't Noordende, A. T., Aycheh, M. W., & Schippers, A. P. (2020). An exploration of family quality of life in persons with leprosy-, lymphatic filariasis–and podoconiosis-related disabilities and their family members in Ethiopia. Transactions of The Royal Society of Tropical Medicine and Hygiene, 114(12), 1003-1012. https://doi.org/10.1093/trstmh/traa090

Vassli, L. T., & Farshchian, B. A. (2018). Acceptance of health-related ICT among elderly people living in the community: A systematic review of qualitative evidence. International Journal of Human–Computer Interaction, 34(2), 99-116. https://doi.org/10.1080/10447318.2017.1328024

Tang, I. C., & Wu, H. C. (2012). Quality of life and self-stigma in individuals with schizophrenia. Psychiatric quarterly, 83(4), 497-507. https://doi.org/10.1007/s11126-012-9218-2

Xiong, M., Wang, X., Su, T., Yang, B., Li, M., & Zheng, D. (2019). Relationship between psychological health and quality of life of people affected by leprosy in the community in Guangdong province, China: a cross-sectional study. BMC Public Health, 19(1), 1-8. https://doi.org/10.1186/s12889-019-6672-x

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Published

2023-06-19

How to Cite

Ariesty Ajsal, A. A., & Rahmawati, R. (2023). Analysis of the Relationship of Stigma to the Quality Life of Leprosy Patients. Jurnal Perilaku Kesehatan Terpadu, 2(1), 45–52. https://doi.org/10.61963/jpkt.v1i2.26

Issue

Vol. 2 No. 1 (2023): Jurnal Perilaku Kesehatan Terpadu (Jupiter)

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